My seizures seem to be accelerating with more episodes happening once or more a week. My fiancé said this was one that had screaming, fighting, and the scariest was he had to pull my jaw open to keep me from biting my tongue completely off!
I have a few more battle wounds this time. I bruised my right shoulder, scratched my collarbone and my right ankle is extremely sore (from kicking the coffee table).
My man said this was not a minor incident and one of the more scary moments. He was not the only one to witness this scary event. Before the seizure took place my outstanding dog, Buddy, was the first one to alert others by barking 5 minutes before it happened. My fiancé looked over and new something wasn’t right. I fell from the couch and my mind is a jumbled mess. Today my uncle, my uncles dog Jake, and my son saw part of the incident.
Seizures are so much more than the seizure itself.
The list for me is:
- Memory loss
- Biting of my tongue, which has been so severe that due to the length of my Gene Simmons tongue, I had to have surgery to remove a small part of it. The tongue is one of the hardest organ to heal.
- Confusion, I have to trust what others tell me took place.
- Fatigue, and while sleeping you can even have crazy dreams afterwards.
- To me the worst part is the impact it has on my family and friends along with the fear of the next one.
This post is getting a little lengthy,sorry for that. My meds should be helping control these outbreaks. I use to have what is called AURORAS. It might sound crazy but it is a real thing. The best way to explain it is you get this feeling, (hard to explain), but it’s a warning sign something is about to happen.
The downsize of it is you might get a 5 minute, 15 minute warning, or like I was told today, I was not myself all day.
Lastly, I want to reach out to fellow epileptics and let them know they are not alone! I am hoping for encouraging comments or if you have questions please ask. Are there any of you with seizures that have had the topic of brain surgery come up over medications? I take high doses of meds for my seizures, but they all have major side effects. Plus, a wide amount of medicines for other health issues lowers seizure threshold.
It feels all and all no win situation.